A dad made a heartbreaking video about his dying son in an effort to fund the cure to save his life.

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A dad made a heartbreaking video about his dying son in an effort to fund the cure to save his life.

Filmmaker Christian Schultz tells the story of Finn Muedder, a 3-year-old boy who suffers from from Hunter’s Syndrome, a rare disease affects about 500 boys in the U.S., an estimated 2,000 worldwide.

Researchers believe they are close to a cure, but not without expensive new research — money Jon doesn’t have — he used what he knew to get the world out.

“My initial reaction is just feeling helpless,” Jon Muedder said. “I’m not a doctor or lawyer, but I do know how to tell stories.”

Using his film school degree and editing experience, Jon and Christian made this short about his son and others suffering from Hunter’s Syndrome.

“It’s our only shot is to get our story out there and raise awareness for a cure that’s sitting there in the lab,” he added.

Finn and his family have established a GoFundMe page where people can contribute to curing Hunter’s Syndrome once and for all. To donate, visit: https://www.gofundme.com/projectalive.






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